Identification for a Rare Disease Known by Many Names

KOL Discovery
Written By A

Situation

An emerging biotech company developing a first-to-market treatment for an ultra rare disease - known by very many names - reached out to Adnexi to:

  • Identify KOLs in the US and rest of world

  • Obtain the complete scientific history of all KOLs

  • Identify rising KOLs most active in the last 2 years

Adnexi Approach 

We deployed the Adnexi platform to perform an algorithmic search for the disease of interest and carefully researched the various names to which this disease was referred to in the literature. We determined that this disease was referred to in the clinical literature in 32 different ways, requiring a customized approach to create a specially tailored subset of relevant data.
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Adnexi processed the following data to discover, rank and profile KOLs:

  • Publications

  • Clinical trials

  • NIH grants

  • Reported payments from biopharma

  • Affiliation

  • NPI Number

  • Email address

Results

Adnexi provided the client with a complete solution, customized for this rare disease. We relied on Adnexi's proprietary search algorithm, to produce a complete and customized search.

• 25,000 authors in the disease of interest

• 7,500 articles published on the disease

• 50 clinical trials working to develop treatments for this condition

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Customized KOL Discovery and Vetting Solution for Biopharma Leader