Identification for a Rare Disease Known by Many Names
Situation
An emerging biotech company developing a first-to-market treatment for an ultra rare disease - known by very many names - reached out to Adnexi to:
Identify KOLs in the US and rest of world
Obtain the complete scientific history of all KOLs
Identify rising KOLs most active in the last 2 years
Adnexi Approach
We deployed the Adnexi platform to perform an algorithmic search for the disease of interest and carefully researched the various names to which this disease was referred to in the literature. We determined that this disease was referred to in the clinical literature in 32 different ways, requiring a customized approach to create a specially tailored subset of relevant data.
Adnexi processed the following data to discover, rank and profile KOLs:
Publications
Clinical trials
NIH grants
Reported payments from biopharma
Affiliation
NPI Number
Email address
Results
Adnexi provided the client with a complete solution, customized for this rare disease. We relied on Adnexi's proprietary search algorithm, to produce a complete and customized search.
• 25,000 authors in the disease of interest
• 7,500 articles published on the disease
• 50 clinical trials working to develop treatments for this condition